I could merrily strangle Frank…

Frank Fitzgerald that is, my body when it goes into it’s alter ego when I am having a seizure. Most of yesterday’s plans had to be modified.

First up, as the fits hit about 2pm, Cathy is going to have to wait for her meal today. I didn’t wake up properly until about 6pm from them and it was only to have a lovely meal the children had done for Bert and I, but we still watched The Hunger Games (think Battle Royale on acid, then you will get my drift).

Lizzie was on her own with me when I had the seizures, and once I started head banging the wall, she leaped in with my midazolam and that was it, Frank disappeared, no more fits. She did regale me with a funny story of how she tried to lug me round the bed to get me comfy, but truth be told, as long as my head is on a pillow, I have what the kids lovingly refer to as my “stinky Beth bear” (a little teddy that Bert bought me when I was in hospital last June and who wears a wedding dress/nightie that Bert made her, and the duvet, I am fine. She did a fantastic job, and wrote the time and type of fits down for Bert to put on my chart when he came home which was literally 5 minutes later as he had been dropping my Mum at work.

I did change Cathy’s water (duh, can’t leave any kind of snake without fresh water for over 24 hours) and Myles asked if he could watch as he hasn’t even seen her properly yet. Well, Madame didn’t disappoint. I put my hand in to get her water dish (I have had advice not to just top it up as a lot of them like to relieve themselves in their water and we wouldn’t see it). Realizing she was in tip top form, I gave Myles a shout as Bert had collected her a lovely flat rock to sit on, and Lizzie had given me 2 HUGE pieces of flint so we sterilized them to go into her vivarium yesterday by boiling them and then baking them in the oven to 120 celcius to rid them of any bacteria. I will point out that Bert got some stones for his fish tank too – that is the bargain for me having Cathy – he is getting a large 480 litre fish tank for the living room for compatible plecs and sharks, with a stone background.

So, water dish disinfected and refilled, Myles came up to see Cathy. I had popped her in her RUB so I could get her dirty substrate out and put her new “toys” in her vivarium so as I was popping her in, Myles came to have a stroke of her. He was really surprised as she didn’t feel how he expected her to at all. He wanted to take a picture of her so may I present his offering (of my iPhone, which doesn’t do macro shots too well!)

New Cathy Pic

We are both absolutely thrilled as she has what looks like a smiley face on her head (Myles noticed it first) and she had a good old taste of the air around him too. I asked him if he would like  hold, but he said he was happy just to give her a stroke for now. He was more than confident doing that, so I don’t want to push him at all. Oh, and please excuse my nightie in the background and be grateful I cropped my head out of the picture too!

So, with help off the forum I signed up to, we have identified her as a possible strawberry snow morph (colour). I don’t know whether or not to be thrilled or bloody annoyed to be honest. I thought I was getting a plain snow which, if you are into genetics is a double trait, whereas a strawberry snow is a selectively bred reptile, and can come with all the problems that are associated with selectively bred anythings. Fingers crossed she is just a snow.

One thing is for sure and that is that she needs feeding up, so with advice and help, I am upping her feeding schedule from one pinkie every 7 days to one every 5 until she sits properly on the chart where she should for her age and length. Although she is still in the “healthy” range, she is on the very low end of the scale and unlike dogs or cats, she can’t tap against the glass asking for more food!

I have made a lovely friend on the forum I signed up to, and he has been fantastic this week – no problem or question to trivial for him to answer as we have exchanged email addresses. It was him suggesting that I move her home round  a little bit given how settled and inquisitive she is this week.

I have to admit, I laughed at Bert when he told me that she was watching TV, but last night, as we settled down, sure as eggs is eggs, her head popped out of her favourite hide and we have worked out she can see half of the TV screen and there she was, either watching the shadows the TV threw or the actual TV. The glow from the laptop screen has alerted her again, and she is watching me type (quite disconcerting to say the least – I am SURE she knows I am talking about her!)

Anyway, I hope Frank doesn’t pay a visit today, and on that note shall bid the adieu

Sarah

Imagine unquiet slumbers for the sleepers in that quiet earth…

Well, considering I have called my corn snake Catherine Earnshaw – Cathy for short, there should be no other title for this entry! I am SO going to be having unquiet slumbers tonight – I called Cathy’s breeder today and she has kept her pinkie down and, come 11.30am I can call to double check she is OK, and then it is off to go and bring her home! I have had a little more information on her morph, she is a snow lavender hypo morph.

I haven’t got any pictures of her yet, but have trawled the internet and found the nearest I can now I have a bit more information. This is what she looks like now:-

Cathy baby

When she is grown up, she is going to look like this, but only with red eyes:-

Grown up Cathy

It is ridiculous how excited I am!

Fortunately today had had some mundane distractions, I enjoyed my pampering session, we went and did the weekly shop, posted Myles’ Mother’s Day card to his Mum, bought my Mum her present – a door stop, and then went and got me a Radar key for using disabled rest rooms whilst I am out. Now, I rang the Government department where I live to ask them about acquiring one and they told me to go to my local authority Town Hall, present my Blue Badge and I would be issued with one. At the price of £6 which they forgot to tell me! So, I also have one of those should I need whilst I am out. I was stunned to find out that you can buy them off Amazon for 66p! I was a tad miffed, but am glad I went through the proper channels to get mine. It is abuse of these things that are causing the disabled facilities to be shut down at an alarming rate.

Right, I have more of the mundane to do – like going and wrapping elephant’s feet (if I can keep my food down) for shipping. I hasten to add, they are NOT ours, we are merely doing it as a favour for someone. I can promise, no pictures of that for sure!

Sarah

Just a little 5.30am post..

Ok, seeings as how I have been showing off a little with my new found ability to both add links and put pictures in a post, this is just going to be a plain old boring one, a quick catch up on what has been going on.

The carbamazapine is building up in my system at an alarming rate, so much so that typing is not the easiest (due to a slight case of double vision) so thank you safari for you in line spell check!

Myles has his first official girlfriend! It is “FaceBook” official, and she put it up, not him. I have to say, she is stunningly gorgeous – he has done so well there. He is going to bring her round to meet us in the next couple of weeks – I can’t wait as she sounds like a lovely young lady.

On the subject of Myles’ girlfriend, bless her, she thought that she had upset Myles last weekend. They were all at another friends’ house discussing what they were getting their Mums for Mothering Sunday (for us, it is this Sunday).

Now I know what I am getting – I asked Myles and Lottie to pick a film for me and we would watch it together downstairs (this might sound odd, but I spend most of my spare time in bed as it is safest for me), so he was telling Sophie (his new girlfriend) this. I don’t want cards or flowers, the fact that they want to spend time with me is enough. Then Myles made an off the cuff remark that he would just get his real Mum a card and shove it in the post (she lives in another country to us). Well, poor Sophie thought she had upset Myles. This is all Myles relaying the story to me yesterday morning by the way.

She thought she had upset him and bless him, he started laughing (I did tell him he was a tinkerbell for doing that!). He explained that he had practically no relationship with his real Mum and that he and I are very close. I was a *tad* confused as to why poor Sophie would make not the mistake, but not understand the set up. Apparently, although Myles calls me Sarah to my face, when he is out of the house, he and all his friends call me Mum, i.e. he says that he had better call Mum and Dad just to let us know what is going on – you get the idea.

Considering his poor relationship with his real Mum, I actually take is as a compliment that he calls me Sarah, as he has explained to me that he has NO happy memories with her.

He does, however, have bragging rights now. He is the only one of his friends whose “parents” are married. ALL of his friends have to choose between where they go home to at night – it really does make me sad. It does, however, make Myles rather smug in a good way!

Myles and I have what we call our “deep and meaningfuls” – our huge conversations that go on for hours. When I first started back in a relationship with his Dad, he dropped a bombshell on me. He told me that if he could have picked a girlfriend for his Dad, he would have picked me. I am not going to lie, I might have leaked some tears at that one – it was such an unexpected and beautiful thing to say for a young man who was 12 at the time. Gah! I can’t believe he is going to be 16 this year! He loves hearing stories about his Dad when he was younger, and I love telling them too! I think like any child or young adult, they forget that their parents had a life before they came along, so he loves plugging the gaps. I actually have known his Mum too since we were both 13. I didn’t like her then, and certainly don’t like her now but never bad mouth her to any of our children. Bert is the only person that gets any feedback on how I am feeling about how she treats Myles.

I asked him if he wanted to get his Mum a Mother’s Day card, and as we were going to town, he just asked me to pick one up for her. He was very specific that it wasn’t to be too over the top, just something simple and not slushy. So, at the grand price of 89p – one bought and put in the post.

So, today. I have a pile of washing I want to pop away, I have a pampering session and then Bert and I are going shopping, THEN I can come home and call the breeder to see if Cathy is happy and I can pick her up tomorrow!

Sarah

Last Sunday afternoon’s wheel in Douglas, because I can’t sleep

Well, it looks like the new drugs might have kicked in a little earlier than I could have dreamed for – I had a visit off Frank last night, but they were nowhere near as violent as they have been, and I came round a lot easier. Downside is, I can’t sleep and seem to have got a little confidence to post some more of my pictures up, so, for your perusal, a selection of pictures I took last Sunday. They were taken up Marine Drive and Douglas Head in the Isle of Man.

Taken on a Fujifilm FinePix S4400, run through Aviary and TitleFx, as per usual.

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This is as far South as you can go by car on Marine Drive now, looking towards Keristal and Port Soderick.

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You can see the remnants of a landslide we had recently – given how wet February was I was surprised it wasn’t worse.

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Proper view of the landslide.

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Quick peek North towards the Marine Drive archway at Douglas Head

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This is the rock formation it its original rotation. Up Douglas Head and Marine Drive there is mainly slate, granite and limestone. It gives the most stunning natural patterns and formations is quite breathtaking.

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Not particularly interesting, but it was to me.

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Steps up to a long gone farm house.

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Again, the rocks in their original orientation – no messing round from me on this front at all – nature did it all for me.

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And that is 3 strikes for nature…

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The top of the original Victorian archway to Marine Drive – I have cropped out all the road works and speed signs as I thought they spoiled it.

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Sir William Hillary – founder of the RNLI.

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I have enjoyed putting these up, it is Wednesday now isn’t it? 2 more sleeps to getting Cathy!! I am ridiculously excited about her arrival! I keep looking at her home, all ready for her and not with her in it. She had better chow down today or I will be having words with her when she gets home!

Lizzie had her ears pierced for the 3rd time yesterday, and now Myles wants his done, so guess were we are going when he goes on study leave – oh yeah, to get his left ear lobe done.

Joshua has got a new job – he starts today and I am thrilled. I think it is exactly what he needs. Even with everything that has been going on, it wasn’t his fault he was made redundant – cutbacks have that nasty side effect. So, he has got a job in a garage and I am over the moon for him.

Ok, not going to lie – I bought a Mac magazine yesterday and I am dying to read it so I shall bid thee adieu for now,

Sarah

 

To put it bluntly, darnation!

To quote Emily Lloyd in the 1987 film “Wish You Were Here” – bloody, bugger, bastard, bum! As you know, I went to go and get the elusive corn snake yesterday but came home empty handed.

She hadn’t fed and quite rightly, the breeder wasn’t happy to let her go until she had. So, he is going to feed her on Wednesday for me, and I can go and get her on Friday.

Needless to say, I WILL be calling on Thursday to check that she has had her dinner!

I got a bit more information on her – although she is being sold as an albino lavender, she is actually a snow lavender morph and is going to be a gorgeous colour when she is mature. Bert has already put snake steaks on the menu for 4 years time – hmm! Think we might be having words come then!

Don’t get me wrong, I was beyond disappointed, but I want a happy, healthy girl when she comes home. So, friday is now the big day.

I should have known that something would go wrong as I have had the most fantastic news. I had my weekly epilepsy MOT at my GP’s surgery yesterday and if anyone has been following my epilepsy related posts, you will know that the combination of medication that I have been on is NOT working. Last week I had 64 seizures and managed to acquire all kinds of new bruises.

I think I had a very prolonged simple partial seizure too, that lasted over about 3 days mid week as I literally had (to quote Lloyd Cole) a lost weekend but it was mid week.

So in I went for my appointment and as per usual, looked as bad as I usually do. I have actually refused to see my current neurologist again as it really isn’t working for me and Bert doesn’t want me to see her again either. Fortunately my GP, Dr Albiston is in agreement so I am currently neruologistless!

THIS has turned out for the best, as for quite some time I have been on a drug called sodium valporate (in the form of Epilim Chrono) and it obviously hasn’t been working. Before I became ill, I was stable on a drug called carbamazapine for 21 years. Now, as Dr Flake (ex neurologist) wanted me to stay off the carbamazapine for reasons best known to herself (when asked, her response was, and I quote verbatim “because I say so”) but Dr Albiston was in disagreement with her as he had managed my epilepsy very successfully himself and was put out to say the least.

Just a quick aside, each week that we go to see Dr Albiston, Bert takes a full record of my seizures for him and as I have been coming off the Epilim Chrono, the seizures have been going up and up. When I was on the full dose, I averaged out about 30 fits a week, but with the neurologist wanting me to drop off the medication, the fits have doubled, and then some.

So, Dr Albiston took one look at my latest record, glanced over my new bruises and quite literally had the “sod it’ written over his face. Yep, I am back on carbamazapine as of last night!!

Normally, I would have to titrate up to my old dose doing it at home, or to go straight back to my old dose do it in hospital, but after the respite fiasco, Dr Albiston has so much faith in Bert that as of last night I went straight back on my old dosage.

Don’t get me wrong – carbamazapine isn’t the nicest of medications to take. It has a rather individual taste to it and I can feel it working it’s way round my system. If this post is a little disjointed, that is why. My head feels a little “wooly’ but I know that will go in a couple of weeks. I used to bitch and whine about taking it but NEVER again will I do so. I am not ashamed to say that I cried when I picked my prescription up, they were tears of absolute joy. I handed over the remnants of the Epilim Chrono with indecent haste too!

So, one very happy Sarah here! Life is looking rather good from where I am sat right now (if you like the literal – on the bed watching BBC Breakfast news with Bert playing games on Facebook!). I am back on the medication I want, I have a pampering session on Thursday, fingers crossed I can pick Cathy up on Friday and we will take it from there!

So, for once, not a whinge in sight –

Sarah